|
|
Our New Comic Book Shows the Power of Family Outreach in Preventing Hereditary Disease |
When you talk to your relatives about hereditary disease, it can be hard to explain how genealogy leads to disease prevention. Our new comic book, Genetic Inheritance, can help. This fictional story of a family with a pathogenic variant is inspired by the lives of ConnectMyVariant members and the powerful results of their work. Share this book with friends and family to help them understand how family outreach can make a difference and what to expect as a member of ConnectMyVariant.
Read the book online and download a digital copy for free here.
If you'd like free physical copies of the book, or you want your genetic counselor or healthcare provider to receive free physical copies, email info@connectmyvariant.org.
|
 |
|
|
Check Out the Changes to ConnectMyVariant Social Media |
Join us on social media! ConnectMyVariant is elevating its presence on social media to enhance awareness of our mission to combat hereditary diseases by uniting families. We're amplifying our engagement by sharing more unique content, including member narratives and notes about our positive impact on individuals with genetic mutations.
Our platforms are buzzing with inspiring stories of our members' journeys, along with essential resources to guide you, especially when communicating with your family. We'll keep you informed about the latest breakthroughs in genetic mutation research and other significant hereditary health matters.
Angela Eden, a ConnectMyVariant executive advisory board member and BRCA1 previvor, is spearheading the initiative to make social media more meaningful and relevant to you. With a 23-year tenure as a communication specialist at the Missouri Department of Transportation and experience as an adjunct communication professor, Angela brings a wealth of expertise to our efforts. We're thrilled about the future of our social media journey.
Be part of our vibrant community on Facebook, Instagram, and LinkedIn for updates and support! Reposting ConnectMyVariant stories with gene- and disease-specific groups that you are part of increases the chances that you can find others with your variant. And reach out to Angela at angelae@connectmyvariant.org if you want her to highlight your story.
Use these hashtags to make a bigger impact: #ConnectMyVariant #GeneticHealth #HereditaryAwareness #FamilySupport #Genetics #HealthJourneys #GeneticAdvances #HealthEducation #CommunitySupport
|
|
|
Sharing Your Genealogy Information with the BYU Center for Family History and Genealogy |
ConnectMyVariant's July 2025 newsletter highlighted the Brigham Young University Center for Family History and Genealogy (CFHG). Our partnership with this center has helped many ConnectMyVariant members build genealogies and meet distant relatives.
Are you interested in working with the CFHG? ConnectMyVariant does not automatically enroll all our members in the center's programs, and we don’t send any member information to the genealogists there. We do introduce the CFHG staff to members who express interest. At that point, staff at the center will reach out to you. If your or your variant group decides to work with them, you will send your information directly to the CFHG. For more information, contact Betty Parkins at betty@connectmyvariant.org.
|
|
|
|
|
 |
ConnectMyVariant is a 501(c)(3) nonprofit.
Your tax-deductible donation helps families prevent hereditary disease.
Visit our donation page at Every.org to give.
|
| Donate Now
|
|
|
|
|
